2012 National Hemochromatosis Patient Survey – FACT SHEET

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We recently compiled the results of our 2012 National Hemochromatosis Patient Survey.

Conducted by the University of Texas at Dallas on behalf of the Hemochromatosis Information Society (HIS), the 2012 National Hemochromatosis Patient Survey was designed to gather information on access to treatment, cost of treatment, and types of medical providers used for general and specialized care by hemochromatosis patients, and other information that may be helpful to individuals, families, or friends of individuals diagnosed with hemochromatosis.

The survey was a voluntary self reporting online survey consisting of fourteen questions. The survey was designed by Marcene Royster under the direction of Dr. Simon Fass of the University of  Texas at Dallas, and has been approved by the University of Texas at Dallas Institutional Review Board.

SurveyResultsFactSheet

SurveyResults

 

 


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