About Us

The Hemochromatosis Information Society is a nonprofit organization providing valuable information to patients and physicians concerning hereditary hemochromatosis.

The mission of the Hemochromatosis Information Society is to promote public awareness about the genetic disorder hereditary hemochromatosis. The organization strives to meet the needs of those individuals, their families and friends diagnosed with hereditary hemochromatosis. In order to prevent adverse health effects and premature death, the Hemochromatosis Information Society supports routine screening of patients for hereditary hemochromatosis. We do not support newborn genetic screening for hereditary hemochromatosis due to inconsistencies that exist in current state and federal laws concerning exemptions and confidentiality.

The Hemochromatosis Information Society operates in accordance with the Texas Non-Profit Corporation Act ("TNPCA"),and is governed by a board of directors.

The Hemochromatosis Information Society is a 501c3 organization. Your tax-deductible donation can be made on our Donations page. Donations are used to provide information to the public via our website and through printed literature. In addition, your support helps cover operating and administrative expenses incurred by the organization.

Thank you for your support!