News & Information
International study identifies potential treatment targets for hypertension – Massachusetts General Hospital, Boston, MA
International study identifies potential treatment targets for hypertension – Massachusetts General Hospital, Boston, MA.
Letter to the FDA
After doing some more research, it turns out that the draft guidance that the FDA proposed related to the FDA’s regulatory requirements applicable to manufacturers of in vitro diagnostic products intended for Research Use Only (RUO) or Investigative Use Only (IUO) might have a potentially negative impact on hemochromatosis patients. You can read the letter that we sent [...]
Advocacy
One of the areas of increased focus for our organization is advocacy. We are working hard to support and promote the rights of patients, advocate for positive changes in the health care system, and enhance health policy initiatives related to patient care. Specifically, we are advocating for policies that promote early detection, easy access to treatment, [...]
New Website – New Direction
Well we have our new website up and running. We thought this would be an excellent time to let you know about our new direction here at HIS. We have spent the last couple of years building a large support group on Facebook. Through the Causes Application, we have recruited over 700 members and raised new money! Our goal [...]
UPDATE: Hemochromatosis Funding Cut!
Congress has deferred decisions on fiscal year 2011 appropriations until





