What is hereditary hemochromatosis?

Hereditary Hemochromatosis (HH) is a genetic disorder in which the human body accumulates excess… (more)

What’s the treatment for HH?

The condition that causes iron overload cannot be cured, but it can be controlled by… (more)

What can I do to stay healthy?

It is important to maintain your health while you are receiving therapeutic phlebotomies… (more)

How can I help others?

Help spread the word about the dangers of too much iron… (more)

How do I join HIS?

Join our Facebook cause!

How do I learn more about the dangers of iron?

Visit these other websites to learn more about… (more)

 

Mission Statement

The mission of the Hemochromatosis Information Society is to promote public awareness about the genetic disorder hereditary hemochromatosis. The organization strives to meet the needs of those individuals, their families and friends diagnosed with hereditary hemochromatosis. In order to prevent adverse health effects and premature death, the Hemochromatosis Information Society supports routine screening of patients for hereditary hemochromatosis.

Message from the President

The goal of the Hemochromatosis Information Society web site is to provide valuable information for people with hereditary hemochromatosis. We want to be THE online resource for hemochromatosis information.

We strive to provide accurate, timely information regarding hemochromatosis and its treatment.

Sincerely,

President

Featured News

March 2010 -

Thank you to Dean and Kathleen for their $100 donation in memory of  Mervin Frady, Jr.

Deadline for Healthcare Reform Petition extended to the end of March 2010.

We are planning to produce a PSA for distribution on local public and college radio stations.  If you have a radio station in your area that runs PSA’s on a regular basis, please email us the information at info@hemoinfo.org.

Need to find a location that will perform a therapeutic phlebotomy? Click on the map to locate a facility near you.

Visit our online store and pick up some nifty gifts with our logo.

Join our cause on Facebook.  We have over 600 members!

Hemochromatosis Funding Cut! - ACTION REQUESTED

Notice to all hemochromatosis patients and family members: We have just learned that hemochromatosis was cut from the Senate version of appropriations for Health and Human Services. Members of Congress need to hear from you!

Action steps:
1. Look up the name and address of your Senator www.senate.gov or Representative (House) www.house.gov
2. Create a brief cover letter stating that you have this disease and that funding must be restored because (add your reason; generally a personal experience can send a great message).
3. Print out a flyer for your state that illustrates the number of people in your state with hemochromatosis. (The Iron Disorders Institute has posted PDFs of every state in the US. Find your state flyer at www.irondisorders.org/your-state
4. Mail or fax your cover letter along with the state flyer to the attention of your Senator or House Representative to all offices (DC and local)